When Parenting is Hard_TEST

I had debated sharing this with the internet, but my blog has been a documentation of my grown-up life and this is a part of my journey. Daniel and I had initially hesitated sharing on Facebook and only told our immediate families. But in the end we decided that on the day of Jack’s MRI we wanted to have people praying on behalf of our little guy. We wanted people to know. We wanted support. And we definitely got that. I was also surprised to find out how many people I know who have had similar scares because their baby had a big head…

Here is a bit of our story.

Pediatrician Well Visit  
As a new parent, these are words you don't want to hear at your child's well visit... "It is probably nothing, but your son's head size is off the charts and I would like to refer you to a Pediatric Neurologist." 

We went to our pediatrician's office expecting the usual. Our biggest concerns were what to expect next in our child’s life. The conversation we had instead was Not.What.We.Expected.

Granted, we knew Jack had a big head. We have joked about it since the first ultrasound when Daniel pointed out the big noggin. Daniel has a big head. His dad has a big head. My dad has a big head. Jack is in good {smart} company.

However, being off the charts means you are an anomaly – even if someone has to be the one who is not average. It's hard when above average is not considered a good thing and it's your child who is fitting this criteria. In Jack's case, our doctor did say that his big head was part of what makes him so cute {we think so, too}.

Anyway, Daniel and I are not worriers by nature. We didn’t want to waste a lot of energy and time worrying about this. But it was still there. Lingering in the back of my thoughts.

I skyped my parents with the news. I told them not to worry, but asked them to keep us in their prayers. I told them not to google, because it would probably create more concern. I told them we weren't going to google, but my curiosity got the best of me and I went ahead and did a brief search. I don't want to worry, but when the appointment came I wanted to be informed.

I'm not going to lie. I cried at the thought of what this could all mean. Then I picked myself up, snuggled up to Daniel, said a prayer for Jack and did my best to let go and let God. Worrying wouldn’t make any potential problems go away.

Pediatric Neurologist Consult 
We went to see the pediatric neurologist. Jack was meeting all of his milestones and was a happy baby. The neurologist measured Jack’s head. Then he measured Daniel’s for comparison. They were pretty similar in terms of percentiles for their respective ages.

The neuro made it clear that the main reason for concern was not that Jack’s head was off the charts, it was more an issue that his head had grown too quickly. It had crossed percentiles in a big way and this was definitely cause for concern. The neuro wanted Jack to get an MRI.

The mama in me did not want to do this to my little boy. But the mama in me also wanted to be sure that we were doing all we could for Jack. We discussed our options: according to our neuro, Jack was too old to do an ultrasound. We could go with a CAT scan but the odds were we would end up doing an MRI anyway. So we decided to schedule the MRI.

The official diagnosis on Jack's paperwork from the neurologist was Macrocephalia. As we left the neurologist, I googled Macrocephalia… Jack didn’t exhibit any of the symptoms of this diagnosis other than having a big head. An MRI would determine if he had Hydrocephalus or if there were any other causes for concern.

MRI
In retrospect I should have talked to my good friend who is an anesthesiologist... She would have told us what to expect and how we could have made sure that Jack had a good MRI experience. But that didn’t happen.

We scheduled the earliest scan possible at 8 in the morning. We had to be there at 6:30 and Jack couldn’t eat after midnight the previous night. He was tired and hungry. And there was no way to communicate to him what was going on. All we could do was be there and hold him.

Daniel spent a lot of time walking the halls with Jack because whenever Jack saw me he would cry from hunger.

We finally got into a patient room and the nurse came in to prep us. She was really friendly and we both liked her right away. She said they would have to put in an IV and that because of Jack’s age they couldn’t numb the area first.

If I had talked to my anesthesiologist friend first, we would have known to request that Jack be put to sleep with a mask first and if that was not possible, we could have considered other children's hospitals like Vanderbilt. But you can’t change the past.

Babies are chubby and their veins are small which makes it hard to insert an IV needle. To start, our nurse put heat packs on Jack's wrists, then it took 4 nurses to hold him down in order to try to insert the IV. During this process Daniel and I held Jack’s hand and stroked his hair. They tried for 40 minutes and Jack fought. The entire time. After 40 minutes they stopped to give him a chance to calm down.

Then came another round of trying... In the end, they managed to get the IV into his wrist. They had to put a splint on his arm to keep the IV from moving. He was so exhausted from fighting them that by the end he just lay still and cried softly.

After the trauma of inserting an IV was over, the nurses let us sit with him in the dark to help him calm down. I rocked and sang to him. He fell asleep in my arms.

They finally came in to take him to the MRI room. We were able to go with him. I held him while they started the drugs and he fell asleep. Watching him get an IV was terrible, but when the nurse told us to kiss him goodbye and leave the room, I struggled not to cry. Leaving him was the hardest thing. He looked so peaceful.

We waited in the patient room. The MRI took less than 5 minutes. We were prepared for the anesthesia to take 15-30 minutes to wear off. Before we knew it, a nurse was carrying him down the hall back to us. He was already awake.

I nursed him and he forgave his nurses. By the time we left, he was happy and even smiled and waved goodbye to the nurses who had to insert the IV.

We went to Chick-fil-a and then drove home. Our little guy didn’t nap much the rest of the day, but went to sleep at 5pm and slept through the night, only waking to nurse. He was so exhausted.

And so we waited.

The Results
We tried our best to not worry; to continue to trust in God that it would all be ok. Friends reached out to say they had similar experiences and their babies were fine. We updated our families and waited for the results.

The afternoon after the MRI, the neurologist’ office called me. Jack’s results were NORMAL. A huge sense of relief flowed over me. I cried. I am so thankful that Jack is ok.

Part of me felt guilty because I know that somewhere another mom received different news. My heart aches for the parents who receive the dreaded call with bad news. They will always be in my thoughts and prayers.

Children are this amazing gift that we have been entrusted with. They are ours. It is scary and awesome that we get to watch a part of ourselves grow up and form into little people. And we have to trust that it will be ok. I think that everyone’s ok is different. For some, ok will be really hard. But we have to trust that whatever happens, it will be ok.This old hymn has been in my head since that first doctor’s appointment:

Walking in sunlight all of my journey,
Over the mountains, through the deep vale;
Jesus has said, I’ll never forsake thee—
Promise divine that never can fail. 

Refrain:
Heavenly sunlight! Heavenly sunlight!
Flooding my soul with glory divine;
Hallelujah! I am rejoicing,
Singing His praises, Jesus is mine!

Shadows around me, shadows above me
Never conceal my Savior and Guide;
He is the light, in Him is no darkness,
Ever I’m walking close to His side.

In the bright sunlight, ever rejoicing,
Pressing my way to mansions above;
Singing His praises, gladly I’m walking,
Walking in sunlight, sunlight of love.

When Parenting is Hard

I had debated sharing this with the internet, but my blog has been a documentation of my grown-up life and this is a part of my journey. Daniel and I had initially hesitated sharing on Facebook and only told our immediate families. But in the end we decided that on the day of Jack’s MRI we wanted to have people praying on behalf of our little guy. We wanted people to know. We wanted support. And we definitely got that. I was also surprised to find out how many people I know who have had similar scares because their baby had a big head…

Here is a bit of our story.

Pediatrician Well Visit 

As a new parent, these are words you don't want to hear at your child's well visit... "It is probably nothing, but your son's head size is off the charts and I would like to refer you to a Pediatric Neurologist."

We went to our pediatrician's office expecting the usual. Our biggest concerns were what to expect next in our child’s life. The conversation we had instead was Not.What.We.Expected.

Granted, we knew Jack had a big head. We have joked about it since the first ultrasound when Daniel pointed out the big noggin. Daniel has a big head. His dad has a big head. My dad has a big head. Jack is in good {smart} company.

However, being off the charts means you are an anomaly – even if someone has to be the one who is not average. It's hard when above average is not considered a good thing and it's your child who is fitting this criteria. In Jack's case, our doctor did say that his big head was part of what makes him so cute {we think so, too}.

Anyway, Daniel and I are not worriers by nature. We didn’t want to waste a lot of energy and time worrying about this. But it was still there. Lingering in the back of my thoughts.

I skyped my parents with the news. I told them not to worry, but asked them to keep us in their prayers. I told them not to google, because it would probably create more concern. I told them we weren't going to google, but my curiosity got the best of me and I went ahead and did a brief search. I don't want to worry, but when the appointment came I wanted to be informed. 

I'm not going to lie. I cried at the thought of what this could all mean. Then I picked myself up, snuggled up to Daniel, said a prayer for Jack and did my best to let go and let God. Worrying wouldn’t make any potential problems go away.

Pediatric Neurologist Consult

We went to see the pediatric neurologist. Jack was meeting all of his milestones and was a happy baby. The neurologist measured Jack’s head. Then he measured Daniel’s for comparison. They were pretty similar in terms of percentiles for their respective ages.

The neuro made it clear that the main reason for concern was not that Jack’s head was off the charts, it was more an issue that his head had grown too quickly. It had crossed percentiles in a big way and this was definitely cause for concern. The neuro wanted Jack to get an MRI.

The mama in me did not want to do this to my little boy. But the mama in me also wanted to be sure that we were doing all we could for Jack. We discussed our options: according to our neuro, Jack was too old to do an ultrasound. We could go with a CAT scan but the odds were we would end up doing an MRI anyway. So we decided to schedule the MRI.

The official diagnosis on Jack's paperwork from the neurologist was Macrocephalia. As we left the neurologist, I googled Macrocephalia… Jack didn’t exhibit any of the symptoms of this diagnosis other than having a big head. An MRI would determine if he had Hydrocephalus or if there were any other causes for concern.

MRI

In retrospect I should have talked to my good friend who is an anesthesiologist... She would have told us what to expect and how we could have made sure that Jack had a good MRI experience. But that didn’t happen.

We scheduled the earliest scan possible at 8 in the morning. We had to be there at 6:30 and Jack couldn’t eat after midnight the previous night. He was tired and hungry. And there was no way to communicate to him what was going on. All we could do was be there and hold him.

Daniel spent a lot of time walking the halls with Jack because whenever Jack saw me he would cry from hunger.

We finally got into a patient room and the nurse came in to prep us. She was really friendly and we both liked her right away. She said they would have to put in an IV and that because of Jack’s age they couldn’t numb the area first.

If I had talked to my anesthesiologist friend first, we would have known to request that Jack be put to sleep with a mask first and if that was not possible, we could have considered other children's hospitals like Vanderbilt. But you can’t change the past.

Babies are chubby and their veins are small which makes it hard to insert an IV needle. To start, our nurse put heat packs on Jack's wrists, then it took 4 nurses to hold him down in order to try to insert the IV. During this process Daniel and I held Jack’s hand and stroked his hair. They tried for 40 minutes and Jack fought. The entire time. After 40 minutes they stopped to give him a chance to calm down.

Then came another round of trying... In the end, they managed to get the IV into his wrist. They had to put a splint on his arm to keep the IV from moving. He was so exhausted from fighting them that by the end he just lay still and cried softly.

After the trauma of inserting an IV was over, the nurses let us sit with him in the dark to help him calm down. I rocked and sang to him. He fell asleep in my arms.

They finally came in to take him to the MRI room. We were able to go with him. I held him while they started the drugs and he fell asleep. Watching him get an IV was terrible, but when the nurse told us to kiss him goodbye and leave the room, I struggled not to cry. Leaving him was the hardest thing. He looked so peaceful.

We waited in the patient room. The MRI took less than 5 minutes. We were prepared for the anesthesia to take 15-30 minutes to wear off. Before we knew it, a nurse was carrying him down the hall back to us. He was already awake.

I nursed him and he forgave his nurses. By the time we left, he was happy and even smiled and waved goodbye to the nurses who had to insert the IV.

We went to Chick-fil-a and then drove home. Our little guy didn’t nap much the rest of the day, but went to sleep at 5pm and slept through the night, only waking to nurse. He was so exhausted.

And so we waited.

The Results

We tried our best to not worry; to continue to trust in God that it would all be ok. Friends reached out to say they had similar experiences and their babies were fine. We updated our families and waited for the results.

The afternoon after the MRI, the neurologist’ office called me. Jack’s results were NORMAL. A huge sense of relief flowed over me. I cried. I am so thankful that Jack is ok.

Part of me felt guilty because I know that somewhere another mom received different news. My heart aches for the parents who receive the dreaded call with bad news. They will always be in my thoughts and prayers.

Children are this amazing gift that we have been entrusted with. They are ours. It is scary and awesome that we get to watch a part of ourselves grow up and form into little people. And we have to trust that it will be ok. I think that everyone’s ok is different. For some, ok will be really hard. But we have to trust that whatever happens, it will be ok.

This old hymn has been in my head since that first doctor’s appointment:

Walking in sunlight all of my journey,
Over the mountains, through the deep vale;
Jesus has said, I’ll never forsake thee—
Promise divine that never can fail.  

Refrain:
Heavenly sunlight! Heavenly sunlight!
Flooding my soul with glory divine;
Hallelujah! I am rejoicing,
Singing His praises, Jesus is mine! 

Shadows around me, shadows above me
Never conceal my Savior and Guide;
He is the light, in Him is no darkness,
Ever I’m walking close to His side. 

In the bright sunlight, ever rejoicing,
Pressing my way to mansions above;
Singing His praises, gladly I’m walking,
Walking in sunlight, sunlight of love.

Special Request - chainsaw accident

This note is for a friend that wanted to know more about Daniel's redneck accident. I was going to just link to the original post about Daniel's chainsaw accident, but I just searched for it and it basically just gives an update that we were at the hospital and asked for prayers.

So here is the whole story (for those of you who have yet to hear it or read about it)... let's just say that accidents and trips to the hospital occur more than we would like them to.

On March 4, 2007, Daniel and I were working on one of our many house renovation projects. This particular project had us outside building a fence. After several hours of digging holes for fence posts, we were ready to cut down the split rails to the right length.

Daniel was using a chainsaw for this process since the posts were large, cumbersome and old. I held the posts in place (a human clamp of sorts) while Daniel trimmed the posts. They had to be cut to taper at the ends to fit in the holes of the vertical posts.

We were on the last post and Daniel was having to force the saw because the wood was really old and hard. Also the blade was probably starting to dull after an afternoon of cutting posts. At the last moment, Daniel was putting a lot of pressure on the saw and the wood broke and the saw jerked out of the wood and into Daniel's leg.

We both looked down and saw shredded blue jeans and blood. I was pretty freaked out while Daniel remained calm and collected. Daniel immediately dropped the saw and clamped his hands around his leg. I ran inside to grab wallets, insurance cards, towels, cell phones and was soon back outside helping Daniel into our car. I sped us to the ER - we figured that was the fastest (and cheapest) thing to do.

We got to the ER and soon Daniel was being wheeled into in an ER room for examination. Initially they thought the would be able to stitch up the gash in the ER and let us go home. But after xrays and several different opinions, the doctor's found that the saw had gone down to the bone and they decided surgery to close the wound would be the most prudent thing to do. There was fear of infection in the bone.

The most interesting thing about this particular ER visit were all the people working in the ER that dropped by our room to see the "chainsaw" victim.

Daniel got 21 stitches in his leg to form an upside down V shape on the inside of his calf. He was very lucky that the chainsaw did not hit any muscles, tendons or bone. He was in the hospital for the weekend and on crutches for 2 weeks while he recovered.

Now we say that Daniel is a real redneck because he has a chainsaw story to tell...

Hospital

It would seem that Daniel and I were due for one of our yearly visits to the ER. It has, afterall, been almost a year since Daniel's last fiasco involving a table saw...

Here is a recap of this week for me...
Sunday night around 10 pm I had severe abdominal pain, but went to bed hoping to sleep it off. Around 1:30 I woke up in even worse pain. After doing some internet research, I took a bath which temporarily relieve said pain. Soon after I was sitting in the hallway crying. After a call to Daniel's dad, we were on our way to the ER. The ER didn't really have a definitive answer for why I was in pain. They sent me home with a pain killer prescription and orders to rest.

Monday was a day of rest for me and I felt fine.

Tuesday I went to work feeling fine. Sometime after lunch I began to experience pain in my right foot and calf muscle. It really felt like a leg cramp, so I ignored it. Tuesday night brought more pain. I tried calling my sister for advice. When she didn't answer, I sent her an email listing all of the reasons I felt that I was "falling apart."

Sometime early Wednesday morning I woke up in severe pain in my leg. I wrapped my heating pad around it and tried my best to sleep. I woke up for work around 7:30 and found that I could not stand up. The pain in my right leg was excruciating. Daniel helped me into the shower and the pain subsided. Daniel made me call his dad who told me that he thought I had a blood clot and to see a doctor immediately.

I called my friend, LaCinda, who referred me to her sister Kathy. Kathy told me to walk in to her clinic. She agreed that she thought that I had a blood clot in my leg and referred me to an imagining center for an ultrasound of my leg.

After the ultrasound, they told me to go immediately to the ER. The ER checked me in and soon had me taking a CT Scan where they discovered the clot in my leg had broken and small parts of it were now in my lung. Then they left me to hang out for 3 hours while they found me a room to check into. By 11 pm I was finally checked into the hospital and in my own room.

Last night I felt very much in the dark with little communication, but today my nurse has been much more informative. They finally let me know that any danger seems to have passed. They are keeping me for observation while they transition me from injections to a pill. The pill has to build up in my system so I am hanging out at Presbyterian Hospital while they transition me from one medication to the other.

The pain in my leg has subsided substantially. I can get up and move around and I no longer have to be inverted in bed. The biggest thing I may suffer from is boredom. I am enjoying the extra time to read and cable television is a nice (albeit expensive) benefit.